[Disability-tech] Recruiting participants for study on disability, fairness, and algorithms

[Ian Moura]

Hi all,

Liz has very kindly given me the okay to use this email list to share
information about my dissertation research, which I am currently recruiting
participants for. The study focuses on disabled people's perspectives on
"fairness," especially in the context of healthcare and home and
community-based services, and when algorithmic tools are used to make
decisions about who receives limited resources.

If you are able to share the study with anyone you know who might be
interested and eligible, I would really appreciate it. Feel free to also
complete the screener yourself if you are eligible. Participants will be
compensated for their time, and I am especially trying to recruit more
people of color (particularly more Black participants), more nonbinary
people, and more men. I am asking people not to post the screener link or
study information on social media in order to avoid issues with scammers
(something that has become a major problem for research, unfortunately!).
Please read on for additional details and a link to the eligibility
screener for people who are interested in participating.

As part of my dissertation research at Brandeis University, I am conducting
a Delphi panel to better understand how people with disabilities define
fairness, especially in situations where organizations are using
algorithmic decision-making tools. Participants in the Delphi panel will
complete a series of three surveys between approximately January and March
of 2025. Each survey should take no more than 30 minutes to complete. A
subset of participants will also be invited to take part in a one-hour
interview over Zoom after the surveys are complete. Participants will be
offered gift cards as compensation for their time.

I am recruiting a total of 35 participants for the Delphi panel, and am
especially interested in ensuring that disabled people of color, disabled
women and non-binary people, and individuals who receive home and
community-based services (HCBS) take part in the study. Participants do not
need to have any specific education or training or prior knowledge of
algorithmic tools to take part in the Delphi panel. People can participate
if they:

1. Are 18 years of age or older
2. Live in the United States
3. Are able to understand and communicate in written English
4. Identify as a person with a disability/disabled
5. Have experience receiving home and community-based services (HCBS) OR
accessing specialized healthcare resources (such as specialist care or
specific medical equipment)

If you or others you know are interested in participating, please use this
link <https://brandeis.qualtrics.com/jfe/form/SV_8fgD6RelkDEcq9w> [
https://brandeis.qualtrics.com/jfe/form/SV_8fgD6RelkDEcq9w ] to complete
the eligibility screener. *Please do not post this link on social media or
share it publicly.* If you have any questions, you can contact me at
ianmoura at brandeis.edu. Thank you for your time, and I hope to hear from you
soon.

Sincerely,
Ian Moura
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